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HemiHelp
provides information and support for children with
hemiplegia and their families and aims to increase
public and professional awareness of hemiplegia and
its associated conditions
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The
Limbless Association provides information,
advice and support, mainly for adults who are without
one or more limbs
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Every
day over sixty children in the UK are born or diagnosed
with a serious disability and the vast majority of them
are cared for at home. Contact
a Family (CaF) is the only UK charity providing
support and advice to parents whatever the medical condition
of their child.
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Patient
UK is a directory of UK health, disease and related
websites. It is edited by two GPs.
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Disablement and Limb Fitting centres in the UK
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Limb
Loss information Centre
This online resource has been created to guide individuals
with congenital or acquired limb loss and their friends,
family and carers through the emotional, physical and
psychological process of coming to terms with limb loss
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| Raisingkids.co.uk
is here to offer support, information, and friendship
to everyone who's raising kids - whatever your circumstances
or income. |
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The
Murray Foundation
The Murray Foundation was established in 1996 by Sir David
Murray as a support service for those affected by limb loss
or absence in Scotland. Since that time the range of help
and support offered has grown to incorporate the many different
aspects of rehabilitation.
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The
original left handed shop for left handed
products and information about left-handed people,
since 1968
left-handed
children
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British
Medical Journal
Produced
by the BMJ
Publishing Group of the BMA, assisted by Stanford University's
HighWire Press
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Prosthetics
is the study of artificial limbs - their design, construction
and fitting to a patient. Modern artificial limbs are
a very different matter from the old wooden leg.
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the
aim of
Riding for the Disabled is to provide disabled
people with the opportunity to ride and/or to carriage-drive
to benefit their health and well-being
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| Dolmetsch
Musical Instruments for One-handed Players: with T.W.
Howarth, Dolmetsch has produced a sophisticated, fully
functional musical instrument at a reasonable price for
players who use only one hand. |
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The
British
Association of Prosthetists and Orthotists (BAPO)
was established to protect the prosthetic and orthotic
profession with regard to its status and interests.
BAPO is the only UK professional body that represents
Prosthetists and Orthotists
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orthoPoint
- new ideas for independent living, information and
communication.
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| RSL
Steeper has gained an enviable reputation in the rehabilitation
products field, particularly with regard to its innovative
artificial arm components and assistive technology systems,
an expertise in both areas unmatched anywhere in the world |
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| Otto
Bock manufactures and supplies comprehensive product
lines in healthcare, foam plastics and information technology.
The wide assortment includes healthcare products such
as prosthetic and orthotic components.
Otto
Bock was founded in 1919 and has grown to become a world
leader in it's field, producing a range of prostetic
components from lightweight systems to computer controlled
knees and hands.
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Dorset
Orthopaedic's quest has been to produce the
most comfortable artificial limbs available.
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Ortho
Europe is a world leader in
the design and manufacture of innovative Orthotic devices.
They also offer a comprehensive range of prosthetic
components and associated products designed for today's
demanding market.
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Ossur
are proud to be at the forefront of a new era in orthopaedic
design and functionality. Our work is as much about
people as it is about products. Our goal is their
comfort, confidence and rehabilitation – helping
them to lead a life without limitations. We never
forget that every time we develop a product or service,
we are helping someone else to build a better life.
And we couldn’t think of a better business to
be in.
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Superkids:
a US-based newsletter for families and friends of kids
with limb differences
Superkids was begun in 1981 as a way of sharing information,
support and concern among families and friends of children
with limb differences. The newsletter is published twice
a year. |
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| PFFDvsg |
| The
goal of the Proximal
Femoral Focal Defect virtual support group is
to be a PFFD information source and a 'virtual support
group' for parents of children with the PFFD birth defect |
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Internet
Resource for Special Children
The
IRSC web site is dedicated to communicating
information relating to the needs of children with disABILITIES
on a global basis
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I-CAN
(International Child Amputee Network) an Internet mailing
list to provide information and support contacts to
children with absent or underdeveloped limbs and their
parents
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UpperEx National Outreach Coalition
UpperEx.Com is dedicated solely to upper extremity
amputees. The mission of this publication and web site is
to provide information and resources relevant to all UE amputees,
whether new or experienced, youth or adult
http://www.upperex.org
also
http://www.upperex.com
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Helping Hands
Foundation
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Helping
Hands Foundation, Inc.
is a not- for- profit support
group made up of parents who have children with upper
limb differences and who are concerned with the challenges
facing the child and the entire family. Although we
are based in the United States, we accept and support
members from around the world.
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The Aussie Hands Foundation Inc offers support for children and adults with hand differences. We provide advice on appropriate educational programs, special equipment, medical and community resources.
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PFFDvsg
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The
goal of the Proximal
Femoral Focal Defect virtual support group is
to be a PFFD information source and a 'virtual support
group' for parents of children with the PFFD birth defect
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The
International
Society for Prosthetics & Orthotics aims
to develop this site and provide general information
about the field of prosthetics, orthotics and physical
rehabilitation for the benefit of it's professional
members and all others who are interested in the field
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| Biomechanics
World Wide is designed to assist all persons in
their search for information on the broad topic of Biomechanics |
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Cornelia
de Lange Syndrome: Common characteristics include:
low birthweight (usually, but not always, under five
pounds), delayed growth and small stature, and small
head size (microcephaly). Typical facial features include
thin eyebrows which frequently meet at midline (synophrys),
long eyelashes, short upturned nose and thin, downturned
lips.
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| Thrombocytopenia
and absent radius (TAR) syndrome |
| Thrombocytopenia
and Absent Radius is certainly a big mouthful but in fact
it is simply a descriptive term.
The
unique feature of Thrombocytopenia and Absent Radius
is that although the radius is absent, the thumb is
present. Most other limb anomalies that involve the
radius also affect the thumb.
There
are a number of other disorders that involve elements
of the blood and abnormal structure of bones of the
arm and it is important to realise that TAR is a very
specific condition.
UK
TAR Syndrome Support Group
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Holt-Oram Syndrome
Holt-Oram syndrome is characterized by upper
extremity malformations involving radial, thenar, or carpal
bones and a personal and/or family history of congenital heart
malformation
http://www.geneclinics.org/query?dz=hos
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