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With the advancement of Ultra Sound Scanning limb deficiencies
are sometimes detected before birth and can cause additional worries
for the parents to be. Early detection of this nature can have its
advantages and disadvantages. It can be helpful in so much as it
gives the families time to find out as much information before birth
as possible and to prepare friends and relations as well as themselves.
On the other hand it can add stress to the pregnancy as parents
wonder if any other problems have remained undetected.
If you have given birth to or have been given a diagnosis of a child
with a limb deficiency, you will know of the shock you have experienced.
You have to deal with some very painful feelings depression, anxiety,
loneliness and perhaps feelings of guilt and anger as well. You
will also have to decide how to break this news to family and friends.
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It is possible too, that you searched your mind over and over again
trying to pin-point the cause of the deficiency, only to find yourself
at a loss. You may even have blamed yourself, wondering if some
previous action, in some way, could have caused your child's problem.
It is likely that your doctors asked you questions about any illness
that you may have had in the past, or drugs that you mayor may not
have taken. This may have led you to believe that the doctors knew
something but were withholding it from you. The reality is that
the doctors cannot give you an answer because in most instances
they themselves do NOT have the answer, only personal theories.
Neither medicine or science, as yet, understands just how or why
a limb stops developing normally during pregnancy. Until they do
they will continue to search. Remember that all through history
there have been babies born with upper limb deficiencies of various
degrees, and it is not just a modern day problem.
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It is possible too, that you searched your mind over and over again
trying to pin-point the cause of the deficiency, only to find yourself
at a loss. You may even have blamed yourself, wondering if some
previous action, in some way, could have caused your child's problem.
It is likely that your doctors asked you questions about any illness
that you may have had in the past, or drugs that you mayor may not
have taken. This may have led you to believe that the doctors knew
something but were withholding it from you. The reality is that
the doctors cannot give you an answer because in most instances
they themselves do NOT have the answer, only personal theories.
Neither medicine or science, as yet, understands just how or why
a limb stops developing normally during pregnancy. Until they do
they will continue to search. Remember that all through history
there have been babies born with upper limb deficiencies of various
degrees, and it is not just a modern day problem.
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However all this does not stop parents blaming themselves, and
if you find yourself continuing to agonise in this way, you should
consider seeking help from another 'Reach' member or Counsellor.
You deserve and need your peace of mind for your own happiness,
the happiness of the family, as well as your child.
There are going to be times when you as parents will feel angry
with your children, this is natural, you will feel angry because
you are human. So if you felt angry when your child was born with
a limb deficiency, it was also because you were human. You were
gravely disappointed; you did not know how you would be able to
cope. If you felt some initial 'drawing away', or had some difficulty
in looking at the limb, you felt this too because your are a normal
human being. Confronted with something strange and inexplicable,
it is no wonder that we experience these feelings; it does not mean
that we do not love the child, or that we will not be good parents.
When your child is newly born, he/she is not yet developed, and
as you lovingly watch your baby grow, change and learn to do things,
you will rapidly forget all these feelings and misgivings.
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