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Before your child walks, you will notice his growing awareness
of his own body. As a developing infant, he will discover his eyes,
nose, extremities, etc., and some parents become unnecessarily alarmed
as the child shows awareness of his limbs. They are afraid that
he will feel badly when he sees a difference. It is a comfort and
help to know that the child's discoveries do not mean he is making
value judgements about them, as he does not have the intellectual
ability at this early stage to judge one thing as lesser than, or
more than, another. They may be your thoughts, they are certainly
not his. Keep in mind that your child did not experience the emotions
that you experienced when he was born, and try not to complicate
the answers to his sirnple questions. If the young child wants to
know why he does not have a hand, he wants an answer and a truthful
one. The simple truth is that he was born without a hand. He is
not preoccupied with the need to know the reason.
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Some children ask questions, while others do not. If your child
does not, do not see this as a sign of emotional disturbance. Children's
personalities vary, and some may not feel the need to question.
Do show them, however, by your own receptive attitude, that you
are open to questions. As children observe the world around them,
they see trees and flowers grow, and they notice their own growth,
so a natural fantasy is that the affected arm or hand may yet grow
to be complete. If your child asks 'Will my arm grow?', you can
explain to him that his arm will grow in size, just as he will get
bigger all over, but that he will not grow a hand.
If you have other children, you may be concerned about how they
will react to the missing limb of their brother or sister. Most
parents find that siblings are able to accept the child with little
difficulty, but again, be open to their questions and realise they
too may have natural fantasies about growth.
We would like to thank Oarlene Talbot M.Sw. of the
University of California for her permission to use text for this
section from her booklet: The Child with a Limb Deficiency: A Guide
for Parents'.
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