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Referral and treatment for a baby born with part or all of a limb missing will differ from that for a baby born with an incomplete hand. But in the first instance all babies born with congenital limb deficiencies should be referred to a Disablement Services Centre (or equivalent specialist Clinic for congenital hand problems). This referral should be made as soon as possible - within the first few months. Where the deficiency is spotted on an Ultra Sound Scan prior to birth, parents should be given the opportunity to visit the DSC. Normally referral will be made to the Centre nearest the families home, however, it should be realised that some centres have more experience and better facilities than others. Assessment by a multi-disciplinary team will ensure your child reaches full potential

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Occupational Therapists

The larger Limb Centres will provide an occupational therapists who should offer advice about practical issues or difficulties that may be encountered by a child with an upper limb deficiency. If you feel your child needs help, ask for an appointment with the Occupational Therapist at your nearest Limb Fitting Centre. If you are not sure where your centre is contact Reach Head Office

A prosthetist is the person you will see if your child may benefit from an artificial limb (prosthesis). They will assess the individual's physical and social needs, and develop prosthetic prescription ideas. They will then take some measurements and a mould of the limb, normally using plaster. This mould is used to make the prosthesis which they will fit to the individual.

An orthotist is the person you will see if your child may need a splint or brace (orthosis). An orthosis helps to hold, straighten or protect part of the body. They will assess the individual's needs to come up with prescription ideas, and like a prosthetist they may take measurements and a mould from which the orthosis is made. Sometimes a custom made orthosis is not necessary and a prefabricated one is prescribed.

To become a prosthetist/orthotist you must successfully complete a degree in prosthetics and orthotics. You can study this at the University of Salford and the University of Strathclyde. More information can also be found through the British Association of Prosthetists and Orthotists.

www.healthcare.salford.ac.uk/prosthetics/
www.strath.ac.uk
www.bapo.org

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